Brooke Eby, an ALS advocate and social media creator known online as LimpBroozkit, died on October 1, 2026, at age 37. The ALS Network announced her death, describing her as an advocate, storyteller and community builder whose work changed how many people understood ALS.
Eby was diagnosed with amyotrophic lateral sclerosis (ALS) in March 2022 at age 33. She documented the disease on social media, worked at Salesforce, founded the ALS support community ALStogether and raised more than $1 million for ALS-related causes.
What Happened to Brooke Eby?
Brooke Eby died on October 1, 2026, at age 37, four years after she was diagnosed with ALS.
The ALS Network announced her death on October 1. Public reports have not established a separate cause of death beyond her long-term illness with ALS, so the article should not assign another cause without an official source.
Eby had continued documenting her health as ALS progressed. In 2026, she discussed increasing difficulty with speech and other effects of the disease. In September, she said that people were increasingly unable to understand her when she spoke.
Her death came months after the ALS Network named her the recipient of its 2026 Dean and Kathleen Rasmussen Advocate of the Year Award. The award recognized her work raising ALS awareness, building community and supporting people living with the disease.
Who Was Brooke Eby?
Brooke Eby was an American business professional, social media creator and ALS advocate who became known for documenting her life with the disease.
Eby grew up in Potomac, Maryland, and graduated from Lehigh University in 2010. She later built a career in technology and business development before becoming widely recognized for her public ALS advocacy.
Her online identity was LimpBroozkit. Through TikTok, Instagram and other platforms, she shared information about ALS alongside personal experiences involving mobility, accessibility, work, relationships and everyday life.
Her content was not limited to medical updates. Eby also discussed dating, travel, adaptive equipment, work and family life, giving followers a broader view of living with a progressive neurological disease.
How Old Was Brooke Eby?
Brooke Eby was 37 years old when she died on October 1, 2026.
Available biographical records list her birth date as December 22, 1988, and her birthplace as Potomac, Maryland.
She was 33 when she received her ALS diagnosis in March 2022.
| Attribute | Brooke Eby |
|---|---|
| Full name | Brooke Eby |
| Born | December 22, 1988 |
| Birthplace | Potomac, Maryland |
| Died | October 1, 2026 |
| Age at death | 37 |
| Education | Lehigh University |
| Diagnosis | ALS in March 2022 |
| Known for | ALS advocacy and social media |
| Online name | LimpBroozkit |
| Organization founded | ALStogether |
| Employer | Salesforce |
Where Was Brooke Eby From and Who Was in Her Family?
Brooke Eby grew up in Potomac, Maryland, in a family that later became closely involved in her ALS care and advocacy.
Her parents were Cliff Eby and Ginny Eby. Her father became a co-caregiver as the disease progressed, while her mother also played an important role in her daily support. The ALS Association documented how both parents adapted their roles as Brooke’s needs changed.
Eby had two older siblings. She described growing up in Maryland with an older brother and sister and maintaining close relationships with friends from childhood.
In 2024, Eby moved back into her parents’ home in Potomac as her mobility and accessibility needs increased. Her family modified the home to accommodate her changing needs.
Her family therefore became part of both her personal life and the public story she documented online.
What Was Brooke Eby’s Education and Career?
Brooke Eby graduated from Lehigh University in 2010 and built a career in technology and business development before and after her ALS diagnosis.
At Lehigh, she studied business information systems. After college, she moved into technology-related work and eventually joined Salesforce.
Salesforce identified Eby as an ISV Principal Business Development Manager within its sales organization. She had worked at the company for nearly eight years when Salesforce profiled her in 2024.
Her professional career continued after her ALS diagnosis. She explained that working provided both income and health insurance while also giving her a way to remain professionally active. Salesforce also supported adaptations to her work as her physical abilities changed.
Her career is an important part of Eby’s biography because she continued to identify as a technology professional while building a second public role as an ALS advocate.
When Was Brooke Eby Diagnosed With ALS?
Brooke Eby was diagnosed with amyotrophic lateral sclerosis in March 2022 at age 33, after approximately four years of unexplained symptoms and medical testing.
Her first documented symptoms began in 2018 while she was working in New York City. She noticed difficulty walking and developed a limp in her left leg. Doctors conducted numerous tests, including imaging and other investigations, but the cause remained unclear.
Her symptoms eventually progressed to her other leg. After years of testing and increasing weakness, she received an ALS diagnosis in March 2022.
Eby was open about the uncertainty surrounding her early symptoms and diagnosis. She later used those experiences to explain how difficult it can be for younger people with ALS to recognize and navigate the disease.
How Did Brooke Eby Become an ALS Advocate?
Brooke Eby became an ALS advocate by documenting her own experience with the disease through social media and using that audience to raise awareness and funds.
After her diagnosis, Eby began sharing her experience online under the name LimpBroozkit. Her posts combined personal updates with humor and explanations about ALS.
The ALS Association reported that her TikTok and Instagram accounts had already attracted large audiences and that she had raised nearly $1 million for ALS research.
Her audience continued to grow. By 2025, Lehigh reported that she had more than 200,000 Instagram followers, while other reporting placed her combined TikTok and Instagram following at hundreds of thousands.
Her advocacy addressed subjects including:
- ALS symptoms and progression
- Mobility and accessibility
- Adaptive equipment
- Dating with ALS
- Working while living with a disability
- Caregiving
- Fundraising
- ALS research
- Support for newly diagnosed patients
This combination of personal experience and public education became the central feature of her online presence.
What Was ALStogether?
ALStogether was an online peer-support community founded by Brooke Eby for people living with ALS and others affected by the disease.
Eby created ALStogether after recognizing that newly diagnosed patients often received large amounts of information but lacked an accessible place to ask practical questions and connect with other people living with ALS. The platform was built as a Slack-based community.
The community connected members with:
- Other people living with ALS
- Caregivers
- Experts
- Organizations
- Equipment information
- Clinical-trial resources
- Financial and practical information
By March 2026, the ALS Network reported that ALStogether had more than 1,700 members. The organization also announced that ALStogether was becoming part of the ALS Network to expand its support and resources.
This was one of Eby’s most significant contributions beyond her personal social media presence because it created an ongoing community rather than simply an audience.
How Much Money Did Brooke Eby Raise for ALS?
Brooke Eby helped raise more than $1 million for ALS research and related causes through her advocacy and fundraising efforts.
The ALS Association reported nearly $1 million raised through her public appeals, while Lehigh later reported that her fundraising had surpassed $1 million. The ALS Network’s 2026 award announcement also described her as having raised more than $1 million.
Her fundraising was connected to her broader advocacy work. She used her social media audience, professional network and public appearances to direct attention toward ALS research and support.
What Was Brooke Eby’s Relationship Status?
Brooke Eby publicly discussed dating and relationships as part of her experience of living with ALS.
Dating became one of the subjects she addressed online after her diagnosis. She discussed the challenges of dating while living with a progressive illness, including how and when to disclose her diagnosis and how changes in mobility affected relationships.
Talking of her love life, Brooke was linked to guys named Brian Pryse and Jon Carty but their relationship were never confirmed.
For that reason, those names should not be presented as confirmed relationship facts unless supported by a direct interview or another reliable primary source.
What is well documented is that Eby considered dating an important part of life after her diagnosis and openly discussed the subject with her audience.
What Was Brooke Eby’s Health Like Before Her Death?
Brooke Eby’s ALS progressively affected her mobility, breathing, speech and other physical abilities during the four years between her diagnosis and death.
Her disease progression began with weakness in her legs. She eventually relied on a wheelchair and increasingly needed assistance and adaptive equipment.
By 2025, Eby had discussed declining breathing capacity and the use of respiratory support. In January 2026, she described symptoms affecting speech and swallowing. By September 2026, she said her speech had deteriorated to the point that people often could not understand her.
She continued to document these changes publicly rather than presenting ALS only as a medical diagnosis. Her posts showed how the disease affected work, mobility, communication, relationships and independence.
Eby died on October 1, 2026, at age 37, after living with ALS for approximately four years.
What Awards Did Brooke Eby Receive?
The ALS Network named Brooke Eby its 2026 Dean and Kathleen Rasmussen Advocate of the Year.
The organization announced the award in March 2026 in recognition of Eby’s ALS advocacy, fundraising, storytelling and community-building work.
The award recognized several connected aspects of her work:
- Public ALS education
- Social media advocacy
- Fundraising
- Patient community building
- Support for people living with ALS
- Personal storytelling
The recognition came in the same year that ALStogether became part of the ALS Network’s broader support network.
